Friday night date-night. Just as we were leaving out the door Brian checked Remy's cecostomy chait tube and it was uncoiling out of his body. PROBLEM. We were told when the tube was placed because of how it coils. DO NOT try and push it back in. Obviously the surgeon's office and IR are closed Friday night at 6:00 so to the ER we went. The first 7 people we saw had no clue what a chait was. UGGG are you kidding me! I know ER people are trying to cover all the unknowns but this experience quickly became ridiculous. They finally reached a doc from radiology who knew what a chait was but didn't want to come in to fix it until Saturday or Monday. The ER team felt like maybe Remy had an infection around the tube (even though I told them he didn't) they started an IV (torture for Rem) and wanted to keep him over-night start fluids, draw, X-rays labs etc. ARE YOU KIDDING ME??? We just needed someone (qualified) to push the darn thing back in. At this point I left the hospital to go get clothes and comfort items for Rem to stay over-night (and divide out the rest of my kids). It was a beautiful summer night, I sat in my car before I pulled out of the parking lot and couldn't decide to laugh or cry. We were just here!!! I just paid all the bills!!!!! Not that I would wish it on anyone else, but isn't it someone else's turn? My friend wrote this fabulous blog post about the silver suit that you slip on when your kid is in these situations. In the most recent movie IRON man 3 his suit flies out of no-where and attaches piece by piece to his body. Breastplate, helmet etc. I had to coach myself into positive thoughts that things would be fine, and I could do this, Rem could do this. IT WOULD BE FINE.
2 hours later when I made it back to the hospital, NEW plan. No infection (told you so) and doc still would come in Saturday at 11:30, Rem could go home. Wait wait and wait some more, it takes FOREVER to get discharged!
We made it home by about midnight. This morning I woke still thinking, isn't it someone else's turn??? and I had a thought.... Several years ago I was talking to my mom's cousin and I asked if her sister-in-law ever had any trials. Her answer was this, "I can't answer for 'Betty' but I can say for myself up until the time my daughter had that terrible infection in her hip we had it pretty good. For as horrible and as hard as that situation was, I would never wish it away for the closeness and depth it brought to my family." Maybe I'm lucky? As I was sitting in the ER scrolling through istagram and facebook watching the fun things others were doing on Friday night I didn't feel so lucky. But maybe just maybe I am.
